​To the National Member Organizations

World Federation of Hemophilia
 

April 17, 2023
 

It is my great pleasure on World Hemophilia Day to introduce the new book published by the National Hemophilia Network of Japan, Talk about Hemophilia. This is the authentic voice of Japanese people with hemophilia who for the first time are sharing their experiences, both past and present, and their vision of the future. The participants include young people, people who worked for pharmaceutical companies, parents, doctors, and nurses.

The topics covered are universal: “Hemophilia and Disability, Illness or Wellness “, “Hemophilia Clinical Practice Front Line – Challenges and Prospects”, “Possibility and Challenges Of Gene Therapy”, “Women and Genetic Carriers of Today In the Hemophilia Community”, “Hemophilia and the Pharmaceutical Industry”, “History and Practice of Hemophilia Nursing”, “Patient Associations – Role and Development”, and “Lessons Learned in the Tragic History of Hemophilia Care”.

We hope that you will read and enjoy this book that many people put heart and soul into. Through it, we believe that you will get a glimpse of how Japan’s hemophilia community has met the challenges that the entire global community faced, as well as what is in store for the next generation.

Sincerely, 

Takeshi Matsumoto
President, National Hemophilia Network of Japan

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